Reproductive Health
This section includes lots of information and resources about endometriosis, adenomyosis, and PCOS; however it also includes tough subjects. If you have issues surrounding reproductive systems, fertility, or children, this may not be a good read for you. Please take care of yourself.
Common Co-Morbidities With Endometriosis
Endometriosis is as common as 1 in 10, however diagnosis is incredibly hard to acheive due to many factors. One issue is that Endometriosis has very similar symptoms to other pelvic conditions, and can occur at the same time as them as well. Often it takes getting one diagnosis to lead to the others.
Adenomyosis
Uterine Fibroids
Painful bladder syndrome (interstitial cystitis)
Polycystic ovary syndrome (PCOS)
Pelvic inflammatory disease (PID)
Irritable bowel syndrome (IBS)
Endometriosis
Endometriosis is a chronic disease in which tissue similar to the inner lining of the uterus, also known as the endometrium, is found outside its normal location, where the tissue should not be. This results in inflammation, as the tissue even outside the uterus will respond to the monthly fluctuations of the menstrual cycle.
The disease affects 1 in 10 reproductive-aged individuals (aged 12-52) - an estimated 200 million women worldwide - and many often experience a decade-long delay in diagnosis. Currently, there is no known exact cause of endometriosis, and there is no cure. Diagnosis currently can take 4-11 years on average.
Symptoms
Common Symptoms
Severe pain during menstruation
Pelvic or abdominal pain not associated with menses
Low back and/or leg pain
Pain with sex
Painful bowel movements
Stomach problems including nausea, bloating, diarrhea and/or constipation
Fatigue
Infertility
Less Common Symptoms
Pain with breathing and/or shoulder pain particularly during menstruation may indicate diaphragm or lung endometriosis
Coughing up blood or collapse of lung during period may indicate lung endometriosis
Feeling sick or faint, or vomiting during your period
Difficulty participating in day-to-day activities because of excessive pain, exhaustion, or weakness
Adenomyosis
Adenomyosis is a condition where tissue like the lining of the uterus invades the muscle of the uterus. It can be either diffuse or focal, meaning it can spread out over the uterus or can be grouped together. This condition has many similar symptoms with endometriosis, which makes it very difficult to tell the two apart.
Symptoms
Heavy menstrual bleeding
Painful periods and menstrual cramps (medical term: dysmenorrhea)
Abnormal uterine bleeding
Bloating
Pain with sex (before, during, and/or after) (medical term: dyspareunia)
Pelvic pain
Infertility
Miscarriage
Diagnosis and Treatment
Diagnosis Process
Pelvic exam:
After talking about your symptoms with your gynecologist, he or she could give you a pelvic exam to feel for any endometriosis lesions, such as cysts or scars
Ultrasound:
Sometimes, ovarian cysts from endometriosis can be seen on an ultrasound—a type of imaging that uses sound waves to produce pictures of the inside of the body
Laparoscopy:
Your doctor may suggest a surgical procedure called a laparoscopy to actually look inside of your pelvis to see lesions. Surgery can help confirm the diagnosis of endometriosis. During the laparoscopy, your gynecologist may remove a small piece of tissue to study.
Treatment Options
Monitoring and Painkillers
Both prescription and over-the-counter painkillers can decrease inflammation and may help with endometriosis-associated pain.
Hormonal Birth Control
Hormonal birth control can prevent estrogen fluctuation, which may reduce endometriosis-associated pain during the period. Hormonal birth control can be used in several ways. Some include:
Birth control pills (includes estrogen/progestin pills and progestin-only pills)
Hormonal IUDs (intrauterine devices)
Progestin injection
Implants
Many people with endometriosis take a very high dose of birth control, which you need a special prescription for.
Laparoscopy
The gold standard treatment for Endometriosis would be a successful excision surgery. Excision surgery is done by a surgeon during a laparoscopy, where they go in and cut out all of the endometriosis lesions from the root. This form of surgery will give the best results, as opposed to an ablation, which is when a surgeon will burn off the top of the lesions, leaving the root intact. Many surgeons are unfortunately not well informed on most up tp date treatments of endometriosis, so when choosing a surgeon make sure this is discussed.
Hysterectomy
A hysterectomy is not a cure for endometriosis, however is for adenomyosis. In a hysterectomy the surgeon will completely remove your uterus, and possibly ovaries. This can drastically improve pain levels in those with adenomyosis, but endometriosis lesions which were not on the uterus will still impact you.
Resources
Finding correct, up to date information on endometriosis and adenomyosis is incredibly difficult. Due to its prevalence in women, it is often overlooked as “just a painful period” or it being all in our heads. These websites and sources were incredibly valuable to me, and were the reason I received the great care I did.
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Nancys Nook
This is an endometriosis learning library. It contains information collected and shared over many years. We have now compiled these resources and present them for you as a living library of information that will continue to grow. It is up to you what you do with that information.
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Endo Found
The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
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Speak ENDO
SpeakENDO.com is your go-to resource for endometriosis
Get tips on how to fully express your symptoms, learn to advocate for your own care, and hear from others who've been there.